WHAT IS MND?
Motor Neurone Disease (MND) is a progressive neurological disorder, one where your motor neurons, the nerve cells responsible for transmitting signals from the brain to the muscles throughout the body are impacted.
What this means is that those vital motor neurones that connect the brain to the muscles stop working. With time, they fade away, leaving a wake of chaos in their path. It's a heart-wrenching struggle for individuals, gradually robbing them of their ability to perform even the simplest tasks. Walking, once taken for granted, becomes an uphill battle. Speech falters, then slips away, leaving behind a haunting silence. Breathing, an involuntary reflex we seldom contemplate, transforms into a daily war.
As the disease gains ground, it doesn't stop. It chips away at muscle strength, leading to a cruel dance of wasting and weakness. Paralysis looms large, meaning even the most basic actions like swallowing, a heartfelt conversation, laughter, a walk with friends, and even hugging your wife, husband, or children become impossible. Soon, life becomes a game of relying on medical devices and an army of 24/7 caregivers, the constant support system that becomes a lifeline.
The bitter truth? There is no known cure for MND, no secret potion that halts its relentless march. Nothing. Despite the strides in understanding its inner workings, effective treatments remain elusive.
For us, it's about more than just fighting MND; it's about paving a path toward hope, resilience, and a future where this insidious adversary is no more than a distant memory.​
